A Cultured Life…

…stumbling through life with two beautiful daughters – often tripping, sometimes running!!

Day 162, d47

on September 22, 2021

Swati is doing well, albeit with one tiny hiccup since the last time I posted 😊

Monday, we went to the hospital even though we did not have an appointment. The previous evening, Swati was feeling a bit “off”. Heavy in the head, a headache, little shaky, and just ‘different’ from other days. The evening before (Saturday) she had been feeling the same and gave her a Tramadol. Since her symptoms were similar I called the afterhours line. The doctor that called back was none other than Dr. Shpall our transplant doctor!

She recommended that we take her to emergency if she ‘does not feel well’. Or we should take her in first thing Monday morning. Given the way Insurance works her, I could sense that Swati was unwilling for an ER trip. Srinivas and I were both saying we would take her if she said the word. After all, we are dealing with so many unknowns, who knows?

This was also the evening we had decided to watch ‘VEER ZAARA’ with Ansh, who was seeing it for the first time 😊 In large part the distraction helped and she managed to eat some dinner as well. WE got through the evening and I began calling the ATC from about 645a on Monday morning. Thankfully everything looked good. There was not reason to be worried. 

It appears that Swati’s system takes a couple of days to get over anything out of the ordinary. This clicked! On Friday evening, Swati and Ansh went out together❤ This was a big step for all of us I think.  Can only imagine what goes on in my child head ☹ I say this a lot, don’t I? If anyone has a crystal ball, please send it my way.

Today is my six monthly infusion. I will be away for around six hours at least. Will do Swati’s infusion after I am back. We are just doing the Caspfungin, which takes around 75 -90 mins. We are sitting with quite a supply of this and the Magnesium but not doing the magnesium at home. 

Thank you everyone for continuing to send prayers and good wishes, for holding Swati in your thoughts.


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