A Cultured Life…

…stumbling through life with two beautiful daughters – often tripping, sometimes running!!

Day 143, d29

on September 3, 2021

Back- where I belong! 🌈💕

In the clinic with Swati today. She is getting magnesium , Caspofungin the anti viral and are waiting to see why others after the labs are completely in.

During yesterday’s visit she got a new medication which I did not recognize. Googled the medication- one, it is a sulfa drug and two , it is used to treat pneumonia. What the heck! They have not done this when we were at the hospital, gave her other antibiótica so don’t know where this new one crept up from.

Yesterday was also time for the weekly dressing change and I am furious about they way it was handled. They should have used an adhesive remover because swati has sensitive skin. They did not have it. The nurse told Swati that it is only available in-patient. 🥺😡

This is a load of nonsense!! I would have never let her continue with the change if I was with swati. One of the things I haven’t learnt is they cannot do anything to you if you say. Srinivas was very upset that he did not know to put who’s foot down and Swati is dealing with too much other things to kick up a scene. Thankfully I have no such qualms so today, I plan on addressing all these.

I plan to go to the 18th floor and take some adhesive removers from Mercy one of our nurses💙 I texted her yesterday and will be prepared for next time.

I am settling down to do some work. More later. Thanks for reading

****Update 12:24 cst****

Yaay! Tomorrow we will know if Swati’s Tacronimus level check can be drawn from the central line.

All these days, three days a week (M, W, F) this Tacro check was a separate additional needle stick in her arm 😞☹️her arms are black and blue and she detests them. On these days, between 5 and 6 the phlebotomist would come by and I would go stand on the other side and hold her hands. My baby 💙💜(alternating arms)

Today, they drew blood from her veins during regular labs and now the nurse drew blood from the central line to compare the Tacro levels. If they match- we are golden.

All the labs including Tacro can be drawn from her CVC. NO MORE STICK.


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