A Cultured Life…

…stumbling through life with two beautiful daughters – often tripping, sometimes running!!

Day 133, d19

on August 24, 2021

A restless night…

..I wish I knew why 😶

Swat was not able to settle down into sleep last night. Ansh was here the evening (Ansh and dad are going to alternate the evening visits ♥️😇) and we decided to have dinner from the cafeteria. She began to sense the oncoming of nausea a little before 9pm and decided to take the nausea medication. I also sensed a sadness bubbling up in her. This is usually brought on by the overwhelming exhaustion she feels. Tired in all ways.

I am not expert but we talked through it the best I could. encouraging her to look beyond the here and now, the larger picture. Telling her there are so many people supporting her and praying for her recovery – but this is too much to expect of a little girl 😰

channeling all my energy, my love 💙

Swati has slept through the nurse visits this morning I-am loathe to wake her up.

Her WBC count this morning is 0.6, up from 0.3 yesterday. Will be watching this closely.

In other news, my mom is back from New Jersey where she spent time with my brother. happy she is here 😇. Such a support for Srinivas and of course she is more than happy to take over the kitchen.

Oh I must confess – yesterday I went down to the 2nd floor of MD Anderson. Wow another world! A Starbucks!! A museum!! Shopping!! And I got a very touristy picture with a mannequin in a glitzy spacesuit.

This was more a recce- I want to go back with Swati. But I laughed for the first time in a long time 😅 I was taking a selfie with the mannequin and an employee insisted that he would take the picture for me, unmasked.

Amidst the noise of my life…..

4 responses to “Day 133, d19

  1. tanya says:

    please send us that photo!! 🤳🥰❤️

    Like

  2. Ashok says:

    BTW, you and mannequin – twins

    Like

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