A Cultured Life…

…stumbling through life with two beautiful daughters – often tripping, sometimes running!!

Day 116, T2

on August 8, 2021

Our second weekend, another Saturday at MD Anderson. Another day, seemingly the same, but oh so different. Now that the cords have been given, everyone is just ….waiting. Doctors, Fellows, Nurses, Patient care tech – waiting.

In the meanwhile, Swati is battling fatigue, nausea, diarrhea, stomach pain – the list for today. She engages herself with the NYT crossword and audio books, and the iPad gifted by her boyfriend is her constant companion.

Everything is being managed but the journey is hers alone. We are but her cheerleaders on the sidelines.

Our last nights nurse was the same one who took care of Swati on the night of her chest pains
Carolin breezed into room, asking if we recognized her. How could I ever forget?? Caroline watched over Swati on a very difficult night and I was happy to have her back. She recognizes that this mom is VERY engaged in her daughter’s care🙋🏽‍♀️ And I try to do this as respectfully as possible. I absolutely do not want my questions to strike a nerve 🤒

Yesterday, Swati began medication to prevent infection caused by the Cytomegalovirus (CMV). This is a serious condition affecting transplant patients in particular. While the CMV does not cause harm in the presence of a normal immune system, it can cause harm in a weakened immune system.

I am trying to maintain a transactional relationship with the drugs and the conditions they address. Let’s take it, manage the effects and go our way. I don’t want to go down a rabbit hole.
I am proud of the fact that ever since i heard the words “Acute Myeloid Leukemia”, I have not googled this or any other associate terminology. On April 13th, at Austin Heart ER I decided that I would keep the doctors in front of me till I was satisfied with the answers. That approach has worked for me – at St. David’s South Austin and now at MD Anderson.

The minute they finish their piece with “any questions?” Or any variation of this, I have the Notes app on my iPhone fired up and ready, questions/thoughts jotted down since their last visit.🥸I am grateful for the intelligence, brilliance, compassion and patience my family has experienced.

After Transplant, I texted the ER attending who made the initial diagnosis at Austin Heart. I was not expecting anything or a reply back. I wanted to let her know how far we had come since the first day. The very next second she texted back this : “Ofcourse I remember her and I get regular updates from Dr. R. Thank you for letting me know. Sending you loads and loads of prayers and good vibes. She will do well.”

I will leave for today on this happy note. Please keep praying for us 🙏🙏🏽🌞

2 responses to “Day 116, T2

  1. Ashok says:

    Anu, You are so strong- im blown away- all power to you.. all… thoughts and prayers with you 💪


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