A Cultured Life…

…stumbling through life with two beautiful daughters – often tripping, sometimes running!!

Day 110, T -4

on August 1, 2021

Day 4/4 Chemo on!!

Hectic this morning. The nurse came in to start premeds at 3 am followed by chemo 1 at 330am. Basically this is two IV lines, one for the meds and one IV saline.
At 430 the IV line started beeping. When that happens the message on the infusion pump reads “occluded line” or “Air-in-line”. We hit the call button and the nurse would resolve. This morning the beeping would not stop! At one point Arnel, our nurse stood by her bed for 40 mins, tapping the entire length of tubing!!

Better to stand than to dash in and out of the room and change into and throw away his PPE gowns😷🙁 By 9 am typical the trash can is 75% full with PPE. I am wearing mine most times, but have to take it off when I go out out the room.

Will continue later. I wanted to leave you with one image – Swati has a smile on her face 90% of the time. The rest I need to gauge and understand what she needs. ♥️

9:57pm CST

Swati is through the 4th and last day of Chemo therapy – almost!
The day was rough – the nausea, the exhaustion, the emotional down- it was too much.

During rounds, the doctors acquiesced to Swati’s request to be untethered from the IV pole for a few hours.
They agreed!!
We all could see Swati’s eyes filling up over the mask.
The emotions were also in part due to the NY connection the doctor had. He knew of CUNY, his three siblings are all lawyers, so…

Swati ate lunch and took a shower without the IV pole. I cannot even begin to imagine what it must have been like ♥️

Both mother and daughter had the deepest nap ever from 2.45pm to 4.30.

Dad arrived with dinner – her favorite Maggi noodles🍜 There was a heaviness in the air, she did not feel like much of anything.
Swati likes to go off and spend time by herself. Now she is constantly bombarded by people. Me, dad, the doctors, the nurses She has no “me time” and I am sure she misses it. I try to leave the room at intervals to give her space but I am afraid if she has to go to the bathroom by herself. Need to avoid falls, under all circumstances.

I had explored the laundry situation earlier in the morning, and when Srinivas was here I went off to do a load. Met a couple of people, all caregivers. We got chatting easily, shared burdens and all. It was nice.

No 3am wake up Chemo tomorrow! Yaaay!!
Swati has a 7 am Radiation appointment tomorrow.

Thanks for reading!!


3 responses to “Day 110, T -4

  1. Bharath says:

    “He who finds joy within himself discovers that his body is charged with electric current, life energy, not from food but from God.“

    Liked by 1 person

  2. runneranu says:

    Bharath 😇♥️


  3. moonsumit says:

    Love n prayers💕


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